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TINA’S TRUST

KINDNESS IS POWERFUL

We give grants to people caring for someone with early onset frontotemporal dementia at home, anywhere in the UK.

How we can help

Apply for a grant

If you are caring for someone with early onset FTD, tell us what could help. No complicated forms or obstacles in your way.

Talk to a person

Unsure if we can help, or simply have another question? Email us and a Trustee will reply within 48 hours. We are a small team and we read everything.

FTD is cruel. Families are robbed of so much in such a short space of time. We want to share kindness when they need it most.

Frontotemporal dementia is the most common early onset dementia with symptoms often showing in someone’s 40s, 50s or 60s, although these can begin at any age. It can affect personality, behaviour, speech, mobility and more. The speed of decline is often rapid. FTD families are likely to be raising children, working, paying mortgages and planning their futures. There is no treatment, and no cure.

Tina’s family created this charity in her memory. FTD changed our family’s lives in ways we could never have imagined. As Tina’s illness progressed so did the demands of caring for her and supporting her two young daughters through something that was incredibly difficult for all of us to understand. Something we’ll never forget from that time is the kindness and generosity of the people around us.

Find what you need

Whether you are caring right now, newly diagnosed, or want to help someone who is.

Can we help you?

What a grant can pay for

How to apply

Understanding FTD

Other sources of support

Stories from families

WHY WE EXIST

Created in Tina’s memory, for the people doing the caring

Tina’s Trust is small, family-run and deliberately practical. We do not fund research or run services. We give money to the person caring at home, quickly and without a mountain of paperwork.

  • We are quick. Most decisions are made within a day or 2. Because a grant that arrives too late is not much use.
  • We trust you. You know what would help your family better than we do.
  • We are specific. — We fund one thing at a time, and we are honest about what we cannot do.

Stories from families

“Four afternoons a month, and I could breathe again”

RESPITE
A grant paid for a sitting service one afternoon a week so Jan could leave the house without worrying.

“We could get to the specialist appointment”

TRAVEL
Three hundred miles each way to a rare dementia clinic. The grant covered fuel and one night’s accommodation.

Illustrative stories for design purposes. Real stories will be published only with written consent.

News & updates

July 2025 – Tina’s Trust is registered

We are now a registered Scottish Charity, number SC054353, and open for applications from across the UK

November 2025 – First grant awarded

Our first applicants have received a grant to help repair their walk in shower. Meaning their loved one can safely receive personal care at home.

Working with Rare Dementia Support

How we are making sure carers hear about us at the point of diagnosis.

Every grant starts with a donation

We are a small, volunteer-run trust. A gift of any size goes directly to a family caring for someone with early onset FTD at home.